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genetic testing

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Published: 10 March 2017
DOI: 10.1215/9780822373056-011
EISBN: 978-0-8223-7305-6
.... Ethnographically, my analysis pivots around an interaction between a radiobiologist and a veteran who participated in British nuclear bomb tests in the Pacific in the 1950s, developments within experimental science that are reconfiguring the biological role of the gene in newly relational ways, and the subsequent...
Book Chapter

By Faye Ginsburg, Rayna Rapp
Published: 05 April 2024
EISBN: 978-1-4780-5939-4
... genetic testing neo-eugenics neuroscience neurodiversity learning disabilities ...
Published: 05 April 2024
DOI: 10.1215/9781478059394-001
EISBN: 978-1-4780-5939-4
... The introduction presents the origins of this book when Faye was a pregnant research subject for Rayna's study of how women responded to prenatal testing. Faye's daughter Samantha was born with a rare genetic disorder, familial dysautonomia. Later, Rayna's son Teo was diagnosed with dyslexia...
Published: 05 April 2024
DOI: 10.1215/9781478059394-002
EISBN: 978-1-4780-5939-4
... This chapter explores a tension foundational to the biopolitics shaping disability worlds in the current neoliberal era, based on fieldwork ranging from science to self-advocacy, what the authors call the double telos of modernity. At genetic testing clinics they observed neo-eugenic discourse...
Published: 14 April 2017
DOI: 10.1215/9780822373070-010
EISBN: 978-0-8223-7307-0
... presence of a genomic idiom in which to talk about these things. The conclusion is not only that people assimilate new data about genetic ancestry to existing ideas about genetics, which have long formed part of the basic conceptual toolkit of many people in Latin America, but also that they tend to see...
Book Chapter

By Peter Wade
... to existing ideas about genetics, which have long formed part of the basic conceptual toolkit of many people in Latin America, but also that they tend to see the data as confirming things they already knew or thought. publics DNA tests ancestry ...
Published: 03 March 2017
DOI: 10.1215/9780822373308-006
EISBN: 978-0-8223-7330-8
..., which purports to detect and establish ancestral bloodline linkages between dislocated Afro-Atlantic test takers and indigenous peoples in specific African countries. It traces the story of William Holland, a Black American who is connected genetically to various groups of people in West Africa, and who...
Book Chapter

By Aihwa Ong
Published: 07 October 2016
EISBN: 978-0-8223-7364-3
... claim that genetic traits among populations in Asia that are relatively new to medical genomics—and being gathered "in the wild"—gain value from being calculated and databased. The author argues that the ethnic heuristic is deployed as an “immutable mobile” that digitally includes majority populations...
Book Chapter

By Aihwa Ong
Published: 07 October 2016
DOI: 10.1215/9780822373643-004
EISBN: 978-0-8223-7364-3
... This chapter introduces the author’s family stories of cancer as a way to present oncology’s recognition of the genetic diversity of this class of diseases. The main focus is on how the Singaporean focus on Asian cancer research generates “contrary affects” of anxiety and optimism. Singapore...
Published: 10 March 2017
EISBN: 978-0-8223-7305-6
..., and culpability, and to show responsibility’s complex relationship with practices of irresponsibilization. Ethnographically, my analysis pivots around an interaction between a radiobiologist and a veteran who participated in British nuclear bomb tests in the Pacific in the 1950s, developments within experimental...